It is always nice to get good feedback and share it with others. Yesterday I met with my personal Oncologist who agreed with the expert specialist at Yale NewHaven. (also thanks to all of you who suggested a second opinion!). Dr. Cooper at Yale thought I should have one more medication, Cytoxan, which he thinks will help the Rhuematoid Arthritis as well. So the question that has arisen, should they take me off my RH med and hope this covers the RH symptoms. Last time Dr. Angevine did this was in May when I tumbled into oblivion. I certainly do not want to go there again! Therefore she is checking with my Rhuematologist, who I just changed. A word to the wise, even though people recommend a good doctor, watch how they not only treat you, but track your progress. I come to find out I should have been have bi-yearly blood tests and never had them with the other RH doctor. Anyway, the good news is that I go off the 2 RH meds I am on, so 2 out and 1 in! My regimen is weekly for the Velcade (chemo) with four weeks on and 2 weeks off. The very good news is I now feel like exercising and getting my muscle tone back, so off the trainer next week.
For someone who hates to take pills, I am finding this a stretch for me. I remember my mother with the pill box and "am, pm, evening" slots...now I know why that is important. Take some with food, some with lots of water, others anytime, some before nighttime and some NEVER later than noon. As I learned last night when I took one of the meds late in the afternoon because i forgot...had insomnia all night, but got a l lot of work done!!
Thanks again to all of you who are tracking my blog and sending comments. You have no idea how much that helps me!!! Stay tuned....
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